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James Lind Alliance

Non-profit making initiative bringing patients, carers and clinicians together to identify and prioritise the top 10 uncertainties, or 'unanswered questions', about the effects of treatments.

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Bookmarked by Elizabeth Rapa on 26 Feb 2015
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H3Africa ELSI RFA Released

Dear Colleagues,

We are very pleased to announce the release of the Human Heredity and Health in Africa (H3Africa): Ethical, Legal, and Societal Issues (ELSI) Research Program (U01) Funding Opportunity Announcement (FOA). The application receipt date is October 29, 2012 at 5:00 PM at the local time of the applicant organization.

Useful Resources

1. NIH Grants Registration Process: In order to submit an application to the NIH, please ensure that your institution has completed\updated the following registrations here (http://h3africa.org/registration_process.cfm).

2. Presentation about the H3Africa ELSI Program: The H3Africa ELSI Program presentation made at the 2012 Applicant Information Sessions can be found here (http://h3africa.org/docs/2012_applicant_meetings/ELSI.pdf). All of the other presentations made at the 2012 Applicant Information Sessions can be found in the agenda section here (http://h3africa.org/applicant_meetings_2012.cfm).

3. H3Africa Social Networking Website: The website can be found here (http://www.nature.com/scitable/groups/h3africa-applicant-discussion-group-22066126).

4. Questions: Please direct questions about the H3Africa ELSI FOA to Ebony Bookman, the H3Africa ELSI Program Director, bookmane@mail.nih.gov or h3africa@mail.nih.gov .

Best wishes,

The NIH-H3Africa Team

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Bookmarked by Editorial Team on 21 Jun 2012
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Publish or Perish. Intensive Course on Research and Publishing in the field of Bioethics.

(Leuven, Belgium, 10 -12 October 2012)

The Centre for Biomedical Ethics and Law (of KU Leuven) is organising an intensive course on research and publishing in bioethics and medical humanities. Many researchers are struggling to get their work published. The objective of this course it to provide them and anyone interested in publishing in bioethics and the medical humanities with coherent information and support. The course offers all the necessary practical tools to get well-planned research work published.

The course will combine lectures with practical examples. There will be time for discussions. Participants will be invited to present their own research work in progress. The language of instruction will be English.

The course is of interest to participants from diverse professional backgrounds, such as nursing, medicine, philosophy and theology, health care administration, to PhD students undertaking courses of study in these areas and to more senior researchers. Anyone interested in publishing in bioethics and the medical humanities will benefit from this course. This intensive course is part of the Erasmus Mundus Master of Bioethics programme organised by a consortium of three European universities, namely the KU Leuven (Belgium), Radboud Universiteit Nijmegen (The Netherlands) and the Università degli Studi di Padova (Italy). Because of this combination, participants of the intensive course will join Master students from all over the world.

The course fee is € 650 if you register and pay as a participant before August 1st 2012, € 750 for registration and payment from August 1st 2012 onwards. This fee includes tuition and course materials, as well as refreshments, three lunches and a dinner. Detailed information on registration and payment can be found at our website www.masterbioethics.org under Intensive Courses.

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Bookmarked by Editorial Team on 25 May 2012
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Case Studies in the Ethics of Mental Health Research

The Journal of Nervous and Mental Disease (Volume 200, Number 3, March 2012)
Edited by Joseph Millum, Clinical Center Department of Bioethics/Fogarty International Center, NIH

Open access. Available at: http://journals.lww.com/jonmd/toc/2012/03000

According to the World Health Organization there are over 450 million people with mental, neurological or behavioral problems worldwide.

This collection presents six case studies in the ethics of mental health research, written by scientific researchers and ethicists from around the world. We publish them together as a resource for teachers of research ethics and a contribution to several on-going ethical debates. Each consists of a description of a research study that was proposed or carried out, and an in-depth analysis of the ethics of the study. The case studies are all freely available on-line from the journal’s website.

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Bookmarked by Editorial Team on 18 Apr 2012
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USAID SCIENTIFIC INTEGRITY POLICY

WASHINGTON, D.C. - On March 28, the U.S. Agency for International Development (USAID) issued a new Scientific Integrity Policy to safeguard the quality and integrity of the Agency's scientific and scholarly activities. Spurred by a 2009 directive from President Obama and subsequent guidance from the White House, this policy articulates the principles regarding how scientific and scholarly activities are supported and carried out, and how research findings are used and disseminated.

Specifically, the policy outlines guiding principles for the entire Agency that will:

* Protect the scientific process from misconduct and from inappropriate influence;

* Promote access to scientific and technical information;

* Maintain a highly skilled technical and scientific staff;

* Convene and use federal advisory committees ethically and transparently; and,

* Ensure quality, methodological rigor, and ethical standards in all USAID-funded research activities.

Many of these principles already align with the high integrity that USAID staff maintain when conducting scholarly activities. The intention of this policy is to capture and employ these best practices throughout the Agency and introduce new ways that USAID can enhance the use of science for development.

To read the policy, visit http://www.usaid.gov/scitech/integrity.pdf (pdf, 441kb)

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Bookmarked by Editorial Team on 2 Apr 2012
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