Bookmarks

Date: Wednesday 25 April 2012
Time: 9:00 am - 6:00 pm
Venue: John Snow, LSHTM, Keppel Street, London, WC1E 7HT, UK
Type of event: Symposium

The London School of Hygiene and Tropical Medicine (LSHTM) is launching its Centre for Global Non-communicable Disease with a one-day Symposium on Wednesday 25th April. This Symposium seeks to build on the momentum from the recent UN High Level Meeting on NCDs.

It is intended that the LSHTM Centre for Global Non-communicable Disease which will act as a reference for people involved in NCD research both inside and outside of the School. The centre will lead to the sharing and dissemination of information, knowledge and expertise, and the development of new research and policy initiatives. The Centre will focus on Low-and-Middle-Income Countries LMICs, but many of the researchers involved are also doing work in High Income Countries (HICs), and one of the aims of the Centre will be to promote collaboration and communication between researchers in LMICs and those in HICs.

To register please visit - http://globalncd.eventbrite.co.uk/

Written by John Donnelly on February 2, 2012

Just 10 years ago, a complete personalized genome test cost $3 billion. Some groups say that this cost could drop to as low as $1000 this year.

With the tests becoming more affordable, and more and more people getting whole genome sequencing tests, a host of related ethical issues are getting more attention, experts told the Presidential Commission for the Study of Bioethical Issues today in San Francisco.

Among them: Who will interpret this genetic data? Is it ethical to allow health care providers to interpret the data without a health systems infrastructure to help them interpret it? What will be the privacy protections to people who have the testing? Are privacy issues around genetic testing any different from other personal health information?

The Commission heard differing views on the thicket of ethical issues surrounding the emerging field.

Click on the link above for the rest of this blog post.

Changes under consideration would ensure the highest standards of protections for human subjects involved in research, while enhancing effectiveness of oversight

The U.S. Department of Health and Human Services announced today that the federal government is contemplating various ways of enhancing the regulations overseeing research on human subjects. Before making changes to the regulations – which have been in place since 1991and are often referred to as the Common Rule – the government is seeking the public’s input on an array of issues related to the ethics, safety, and oversight of human research. The changes under consideration can be found in an Advance Notice of Proposed Rulemaking (ANPRM), Human Subjects Research Protections: Enhancing Protections for Research Subjects and Reducing Burden, Delay, and Ambiguity for Investigators, published in the July 25 Federal Register. The proposed changes are designed to strengthen protections for human research subjects.